Welcome Home, Sweet Baby Girl!

As you can see from the photos, we made it home yesterday with oru Sweet Baby Girl!   Yesterday was sort of a roller coaster for us since we spent lots of time at the hospital waiting on blood work to clear her. We also had a little problem with her medication.  She's on a medication that helps open her lungs and helps her better absorb oxygen...she's had tremendous results on it and it's likely the reason we got to take her home.  HOWEVER....it's REALLY HARD to find a pharmacy that's open on Thanksgiving.  Soldier and I spent 30 - 45 minutes looking up pharmacies on our phones and calling with no luck.  My fab Facebook friends handled the problem in about 4 minutes and found two pharmacies that would fill our prescription. We thought we were golden.  Little did we know, the drug she is on is apparently rather rare and isn't stocked at most pharmacies.  Unfortunately, no one foresaw that possibility, so we happily took our little baby home.  After our homecoming, Soldier ran back out to WBAMC to fill the script and discovered that WBAMC doesn't carry it, nor did the 24 hour Walgreens.  I was a little panicky at the thought of having a baby with respiratory troubles and not having medication for her. I called the NICU and explained the situation to the nurse and was sure they would tell me to bring her back for readmission but they just said to have Soldier stop by and they'd give him a 24 hours supply to get us through.  I'm not sure how kosher that is, but I'm grateful because I didn't want to give my SBG back!!!   On Wednesday night, a home health company delivered an oxygen cylinder and a pulse/oxygen monitor for her and taught me how to use it all.  She was discharged on a little bit of oxygen, which was disappointing since she was doing so well yesterday.  But, her regular doctor wasn't in yesterday and I kind of think the oxygen issue is just a matter of different doctors since she still seem to be doing exceptionally well on the oxygen.  They've given me the OK to test her off oxygen when I think she's ready, so I'm watching her saturation levels today and maybe we'll try tonight or tomorrow.  Mommy's a little more tentative about messing with the oxygen than the NICU nurses are!

We're discovering all kinds of adventures with the baby and equipment.  It's not easy to move around the house with SBG since she's attached to a big oxygen tank on wheels and a heavy monitor that plugs into the wall.  Moving her anywhere beyond the three foot radius that her cords allow requires two people.  I am humbled by the experience and have realized that I may have "understood" that getting out and about was "difficult" for someone with physical limitations or adaptive equipment, but honestly, I had no idea how challenging just existing on a daily basis could be...and I'll I'm dealing with are two, relatively small, pieces of equipment.  Mike and I are learning how to maneuver Olivia and are setting up "Olivia stations" in the living room and bedroom so we can minimize the times we have to shuffle her equipment around, but I'm definitely looking forward to the day when I can ditch her accessories.   I also feel like a first-time Mom again: staying awake and watching her breathe. (More accurately...watching the pulse ox monitor.)  Jumping when she makes a noise or when that dratted monitor alarm goes off. (We haven't had an actual desaturation alarm, which is great.  We just have a million alarms telling us the sensor isn't getting a good read, usually because we're changing her diaper or she's kicking her feet around. We've done everything we can to ensure the sensors are in place securely and the nurse told us it just happens, but still....it's annoying!) Obsessing about germs. (Why do I always have babies during the cold and flu season??)    I also worry about Monster Boy and Bunny Girl messing with SBG's O2 controls...either increasing or decreasing her flow.  They can't turn it off but the adjustment knob is super easy for little hands to manipulate.   I spoke with the home health company and they are getting us a smaller, more portable tank in a little shoulder bag so we can get Olivia in the car and to her doctor's appointments easier, so that should help.

Aside from those adventures, our first night was pretty smooth and a pretty typical "Baby's First Night Home"  Soldier and I didn't get much sleep, but somehow SBG seems well rested.  I suppose I'm better off than some new moms...I'm a week post-cesearan, so I'm feeling a lot better than some new mommies would feel when they bring their babies home. That makes the in-and-out of bed routine a lot easier at night!   (And, a lot less painful.)

Thankfully, things with Tricare have been pretty smooth.  We're expecting some huge bills and are getting lots of calls from various billing departments.  So far, between my conversations with Tricare and the various billing reps, everything seems to be pretty easy. We've had one little issue with her medication and with the hospital-grade breast pump I rented, but it's not a big deal. (Tricare only covers pump rentals for premature newborns, not 9 pounders that stopped breathing and couldn't nurse, but whatever...it's not a crisis.)   We've got a bunch of follow up appointments in the next couple of weeks, but I can't schedule them since everyone is closed for the holiday today.

 Yesterday, one of the wives in our unit blessed us with a beautiful Thanksgiving feast, delivered to the house and ready to eat.  Honestly, I would have been happy with leftovers in a plastic bag, but she made a beautiful turkey, arranged and presented better than any turkey I've ever done and included all the sides and extras.  What a treat for us and I was extra thankful for her when Ethan asked why we weren't celebrating with turkey like everyone else was.

I also want to say how grateful I am for our nanny extraordinaire and my parents. Extraordinary cleared her day last Wednesday to stay with Monster Boy and Bunny Girl while I went in "just to be checked,(haha) and ended up staying with the kids all day. When I was admitted, my father ran out of a meeting, went straight to an airport and snagged a seat on the next flight to El Paso.  Luckily, he was already in Texas, so he made it out here in record time. (I think less than six hours after he got the phone call he was at the hospital checking on me and relieving Extraordinary at the house.) On his first day on the job, Grandpa managed to get both kids out the door for preschool, was back home to let the housekeeper in, back out the door for preschool pick-up and then to the airport.  My mom flew out on the first flight the morning after SBGwas born, she made it here before noon and has been on the job since. She had help from my Dad until Sunday when he returned to work but she's managed grocery shopping, laundry, cleaning, Monster Boy and Bunny Girl (in their "finest" moments!) and still had time to be a shoulder for me to cry on when I have a "Mommy Moment."  (And I think she's worked in a little cyber-shopping as well!)   I'm so incredibly grateful that my parents could drop what they were doing and come to the rescue.  I know my Army Family here at Fort Bliss is always available to help, but it sure did make things easy those first few days to know that everyone was settled and taken care of.  And, I'm grateful to have the extra hands so I don't have to take SBG out of the house right now with all of her equipment and I'm not supposed to drive yet.

Our plan is to lay low and "recover" over the next couple of days...try to get the family into a new normal routine and get a little sanity back into everyone's heads!  I hope you all had a wonderful Thanksgiving and a successful Black Friday! Thank you for all your prayers!